Director of Patient Advocacy

Job Summary

Leading the U.S. patient advocacy strategy for inherited metabolic disorders, the full-time Director of Patient Advocacy will develop partnerships with advocacy organizations, integrate patient insights into company strategies, and drive community engagement initiatives, all while working remotely.

Key responsibilities:

• Develop and execute the U.S. IMD patient advocacy strategy aligned with organizational priorities and community needs
• Build and maintain relationships with patient advocacy organizations and community leaders to represent patient perspectives
• Lead patient engagement initiatives and collaborate with internal teams to integrate advocacy strategies into various business functions

Required qualifications:

• Bachelor's degree required; advanced degree in public health, healthcare, life sciences, or a related field preferred
• 8+ years of experience in patient advocacy, patient engagement, or related fields with a focus on advocacy strategy development
• Proven ability to establish trusted partnerships with advocacy organizations and external stakeholders
• Strong strategic thinking skills with experience translating community insights into actionable plans
• Knowledge of healthcare compliance and industry regulations related to patient advocacy interactions